The Boy Whose Skin Fell Off
Create a free account Add it to your list, track every episode, rate it.
Synopsis
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
Details
- Patrick Collerton
- March 25, 2004
- Released
- United Kingdom
- Channel 4 Television
- 50m
Where to watch
No known streaming options in United States.
